MEMORI-net

TO11

Enhancing institutional capacity of public authorities and stakeholders and efficient public administration.

The project in numbers
Duration:
21 months
Start date: 01.10.17
End date: 30.06.19
N. Partner: 6
 
Progress
Budget:
808.406,10€
Budget FERS:
687.145,18€

The project in numbers

Duration: 
21 months
Start / End: 
01.10.17 to 30.06.19
Project progress: 
100%
Budget: 
808406.10€
Budget FERS: 
687145.18€

MEMORI-net

Network for the Post-Stroke recovery of Mental and Motor Functions
Priority Axis 4
Enhancing capacity building and cross-border governance
Specific Objective: 
OS 4.1.
Investment Priority: 
PI 11CTE
Typology: 
Standard
Overall Objective of the Project: 

MEMORI-net aimed to create a common institutional framework for managing the rehabilitation pathways for post-stroke patients, thanks to which all the centres involved in the various rehabilitation phases will adopt a common Diagnostic Therapeutic and Assistance Pathway (DTAP) with standardised protocols for evaluating patient deficits and for integrated cognitive-motor rehabilitation, and an ICT platform to facilitate cooperation among institutions, stakeholders and families.

Project summary: 

MEMORI-net was a joint effort aimed at improving the post-stroke rehabilitation management strategies and establishing common diagnostic and therapeutic protocols based on the most advanced scientific knowledge and best international practices. With over 4000 new cases per year within the program area, stroke is one of the leading causes of intellectual and motor disability. Since stroke can affect people of productive age, it has a profound impact upon families, the healthcare system, and the entire local economy. Although stroke is an acute vascular injury suffered by the brain, it can cause disabilities throughout the body that require multidisciplinary rehabilitation efforts, which aren’t all available at every centre within the program area. Stroke rehabilitation therefore involves various institutions, and requires considerable coordination, which is hindered by the absence of shared protocols, the limited use of home rehabilitation and ICT technologies, the lack of tools for linguistic minorities, and legal limitations in the transfer of personal medical information. In order to resolve these territorial issues, MEMORI-net aimed to create an inter-regional network of excellence that will connect Stroke Units and University Centres specialised in diagnostics and ICT technologies with Rehabilitation Centres, Health Spas, and Stroke Patient Associations present within the program area. Through a excellent communication and training program for medical teams and families of patients, MEMORI-net fostered the mutual exchange of knowledge and the improvement of rehabilitation practices. MEMORI-net contributed to the EUSALP and EUSAIR strategies by providing a network for the clinical validation of innovative rehabilitation products, and attracted patients from other regions. MEMORI-net’s impact extended beyond the project’s purpose by opening up new prospects for the rehabilitation of other neurological diseases.

Main results: 

MEMORI-net’s primary result is been the construction of a common institutional framework in the field of social welfare in order to promote the efficient use of public competences and resources for coordinating personalised rehabilitation services for stroke patients, even taking cultural differences and linguistic minorities into account. Even private rehabilitation centres, such as private clinics and health spas, benefited from access to complete and standardised integrated cognitive/motor rehabilitation programs. Local health authorities benefited from a reduction in costs as a result of fewer hospitalised patients, thanks to the possibility of using computer systems to carrying out remote rehabilitation programs outside the hospitals, even directly at the patients’ homes. These solutions paved the way for a lasting improvement in the institutions’ management of people who need to receive general cognitive and motor rehabilitation. MEMORI-net modernised the public administrations, and improved the quality of the services, which benefited from harmonised and coordinated experiences and protocols being shared between institutions on both sides of the border. MEMORI-net improved institutional competence by training teams of social/healthcare specialists through professional training programs held at partner institutions and associates, with a particular focus upon ICT technologies and the harmonisation of the diagnostic and rehabilitation protocols developed by the project. Through a public awareness campaign carried out with the support of patient associations, MEMORI-net aimed to increase the patients’ participation in cognitive and motor therapies outside the hospitals, thanks to their families’ involvement in the home training program.

 

The project produced different teaching materials for patients, relatives and caregivers:

 

videolecture Title: Stroke (titolo originale: Možganska kap)
Speaker: Anton Grad (Isola General Hospital )

Read more: Video lezione
videolecture Title: Physiotherapic exercises for stroke rehabilitation (with videos)

Read more: webpage with videos
videolecture Title: Che cos'è l'ictus?
Author: Prof dr. Anton Grad, neurologo (SB Isola and University of Primorska)

Read more: web page

The project has seen the preparation of a series of video lessons dedicated to doctors and specialized personnel collected during various events organized by the MEMORI-net project or to which the project has collaborated. Below is a list of these video lectures with their references.

Summer event - Trieste, 2018

videolecture Title: Biomarkers of rehabilitation after stroke
Speaker: Giulia Annovi (UniTS)

Read more: VideoLecture
videolecture Title: Development of a neurofeedback procedure for the upper limbs rehabilitation
Speaker: Joanna Jarmolowska (UniTS) and Aleksandar Miladinović (UniTS)

Read more: VideoLecture

Cerebral stroke: MEMORI-net and the new rehabilitation perspectives - Bibione, 2018

videolecture Title: Rehabilitation of Cognitive Disorders after Stroke
Speaker: Alberta Lunardelli (ASUITS)

Read more: VideoLecture
videolecture Title: Assessment and rehabilitation of motor deficit in ischemic stroke
Speaker: Angelo Lucangeli (USLL10)

Read more: VideoLecture
videolecture Title: Neurobiological markers of post-stroke rehabilitation
Speaker: Enrico Tongiorgi (UniTS)

Read more: VideoLecture
videolecture Title: Ischemic Stroke: Clinical and Therapeutic Implications
Speaker: Bojan Rojc (SBI)

Read more: VideoLecture
videolecture Title: Neuromotor rehabilitation by neurofeedback
Speaker: Pier Paolo Battaglini (UniTS)

Read more: VideoLecture
videolecture Title: Neuropsychological assessment in patients with stroke
Speaker: Giulia Galli (USLL4 Veneto Orientale)

Read more: VideoLecture

18. National Congress of the Società Italiana di Riabilitazione Neurologica (SIRN) - Trieste, 2018

videolecture Title: Computer brain interface applications (original title: Applicazioni delle brain computer interfaces)
Speaker: Piero Paolo Battaglini

Read more: VideoLecture
videolecture Title: EFNR master project
Speaker: Giorgio Sandrini (Università di Pavia)

Read more: VideoLecture
videolecture Title: Rehabilitation guidelines and ISO-SPREAD (original title: Linee guida riabilitazione e ISO-SPREAD)
Speaker: Michela Coccia

Read more: VideoLecture
videolecture Title: “Care of stroke patients from acute phase to rehabilitation” A Tyrolean Project
Speaker: Leopold Saltuari

Read more: VideoLecture
videolecture Title: Postural and gait analysis with wearable systems in balance disorders (original title: Analisi posturale, and del cammino con sistemi indossabili nei disturbi dell’equilibrio)
Speaker: Mariano Serrao

Read more: VideoLecture
videolecture Title: Critical management of the stroke patient (original title: Gestione critica del paziente con ictus)
Speaker: Danilo Toni

Read more: VideoLecture
videolecture Title: Indications and criticalities - Intensive rehabilitation in stroke (original title: Indicazioni e criticità - Riabilitazione intensiva nello stroke)
Speaker: Valentina Pesavento

Read more: VideoLecture
videolecture Title: Early rehabilitation in patients with stroke
Speaker: Aleš Pražnikar

Read more: VideoLecture

During the development of the project, some articles of scientific relevance were published:

  • A “noisy” electrical stimulation protocol favors muscle regeneration in vitro through release of endogenous ATP. Experimental Cell Research, Volume 381, Issue 1, 1 August 2019.
    Read more: Articolo
  • Neurofeedback induced restoration on sensorimotor rhythm after 24h of hand immobilization. Experimental Cell Research, Elsevier, 2019.
    Read more: Articolo

In addition, some online tutorials have been prepared for the description of what has been developed in the project:

  • Introduction to the MEMORI-net protocol.
    Read more: Guide
  • Introduction to the MEMORI-net cognitive mobile APP.
    Read more: Guide
  • Introduction to the MEMORI-net ITC Platform.
    Read more: Guide
  • MEMORI-net platform for data collection: specifications.
    Read more: Guide

Partner

Partners of MEMORI-net:

  • Università degli Studi di Trieste, Italy (Lead partner, PP1)
  • Azienda USLL10 - Veneto Orientale, Portogruaro, Italy (PP2)
  • Splošna Bolnišnica Izola, Slovenia (PP3)
  • Znanstveno-raziskovalno središče, Koper, Slovenia (PP4)
  • Scuola Internazionale Superiore di Studi Avanzati, SISSA, Trieste, Italy (PP5)
  • Univerza v Novi Gorici, Nova Gorica, Slovenia (PP6)

Associated partners:

  • Medicina Riabilitativa – ASUITS Ospedale Maggiore Trieste, Italy
  • Bolnišnica Sežana, Slovenia
  • Univerzitetni rehabilitacijski inštitut Republike Slovenije – SoCa, Slovenia
  • Bibione Thermae, Italy
  • Thermana d.d. Laško, Slovenia
  • Združenje bolnikov s cerebrovaskularno boleznijo slovenije, Slovenia
  • Direzione centrale salute, integrazione socio sanitaria, politiche sociali e famiglia – Area servizi assistenza ospedaliera - Regione Autonoma Friuli Venezia Giulia, Italy
  • Health Ministry of Slovenia, Slovenia

Lead Partner

Università degli Studi di Trieste Dipartimento di Scienze della Vita

Trieste
ITA

Project partner 1

Ospedale San Tommaso dei Battuti, Azienda ULSS n. 10 "Veneto Orientale" - Portogruaro, Italia

Venezia
ITA

Project partner 2

Splošna Bolnišnica Izola - Izola, Slovenija

Obalno-kraška
SLO

Project partner 3

Centro di Ricerche Scientifiche - Capodistria, Slovenia

Obalno-kraška
SLO

Project partner 4

Scuola Internazionale Superiore di Studi Avanzati SISSA – Trieste, Italia

Trieste
ITA

Project partner 5

Univerza v Novi Gorici UNG – Nova Gorica, Slovenija Laboratorij za vede o okolju in življenju in Center za informacijske tehnologije in uporabno matematiko

Goriška
SLO

Documents

Poster evento annuale 30/05/2018Poster evento annuale 30/05/2018
MEMORI-NET_ITA.pdf
( 581 bytes, published on 12 June, 2018 - 09:30 )
Brochure 2018Brochure 2018
brochure_2018.pdf
( 639 bytes, published on 24 June, 2019 - 17:38 )
Poster 2018Poster 2018
poster_2018.pdf
( 831 bytes, published on 24 June, 2019 - 17:38 )
Brochure 2019 - FINAL EVENTBrochure 2019 - FINAL EVENT
brochure_2019.pdf
( 687 bytes, published on 24 June, 2019 - 17:38 )
Poster 2019Poster 2019
poster_2019.pdf
( 915 bytes, published on 24 June, 2019 - 17:38 )
AGREEMENT 2019AGREEMENT 2019
MEMORI-NET-ACCORDO-AGREEMENT-SPORAZUM not signed.pdf
( 275 bytes, published on 30 June, 2021 - 22:03 )

Objectives and Activities

THE MAIN GOAL OF THE PROJECT

MEMORI-net aimed to create a common institutional framework for managing the rehabilitation pathways for post-stroke patients, thanks to which all the centres involved in the various rehabilitation phases will adopt a common Diagnostic Therapeutic and Assistance Pathway (DTAP) with standardised protocols for evaluating patient deficits and for integrated cognitive-motor rehabilitation, and an ICT platform to facilitate cooperation among institutions, stakeholders and families.

 

SITUATION AT THE END OF THE PROJECT (30/06/2019)

The activity carried out during the 21 months has contributed to the creation of a common institutional framework in the social-welfare field to promote an efficient use of skills and public resources to coordinate personalized rehabilitation services aimed at patients who have suffered a stroke, taking into account cultural diversity and linguistic minorities.

There have been several targeted initiatives for the different target groups envisaged by the project, all documented on the project website and some references of which are reported below. Some of the main public events organized are the following:

  • for medical personnel and experts in the sector: "CEREBRAL STROKE: The MEMORI-net project and the new rehabilitation perspectives" - Bibione, 26 October 2018;
  • for patients, families and caregivers: "Dan odprtih vrat nevrološke dejavnosti Splošne Bolnišnice Izole" - Isola, 19 January 2019;
  • for patients, families and caregivers: "Ischemic stroke: how to recognize it and how to intervene" - Portogruaro, 14 June 2019.

There are numerous publications in newspapers, in various magazines, participation in scientific conferences, and in radio and television broadcasts.
In addition, a wide range of different educational materials have been published on the project website. It highlights the great work done for the development of a large number of video lessons subtitled in Italian, English and Slovenian for doctors and experts in the sector and patients, families and caregivers.

MEMORI-net has developed and made available an E-health solution that supports the integrated management of post-stroke patient rehabilitation according to the protocol defined by the project partners. This platform is made up of two components:

  • a mobile cognitive application that includes a series of exercises covering 5 different cognitive areas: attention, control and inhibition, working memory, planning and flexibility;
  • a web system available for hospitals to facilitate communication and the final operation for the improvement of patients managed in the cross-border region.

The project ended with the final event held in Trieste on 27 June 2019, where the ceremony for the signing of a joint agreement aimed at the adoption of the Operating Protocol shared between 4 hospitals operating on the two Italy-Slovenia borders took place: ULSS4 Veneto Orientale, ASUITS, Izola General Hospital and Sežana Hospital.

Contacts

Università degli Studi di Trieste Dipartimento di Scienze della Vita

0039 0405583001
Piazzale Europa 1, 34123, Trieste, Italia
Tongiorgi Enrico

Ospedale San Tommaso dei Battuti, Azienda ULSS n. 10 "Veneto Orientale" - Portogruaro, Italia

0039 0421228010
Piazza De Gasperi 5, 30027 San Dona' Di Piave, Italia, 0039 0421228010
D'Anna Sebastiano

Splošna Bolnišnica Izola - Izola, Slovenija

00386 (0) 56606399
Polje 40, 6310 Izola,Slovenija
Rojc Bojan

Centro di Ricerche Scientifiche - Capodistria, Slovenia

00386 (0) 56117500
Titov trg 4, 6000 Koper/Capodistria, Slovenija
prof. dr. Rado Pišot

Scuola Internazionale Superiore di Studi Avanzati SISSA – Trieste, Italia

0039 0403787111
Via Bonomea 265, 34136 Trieste, Italia
Rumiati Raffaella

Univerza v Novi Gorici UNG – Nova Gorica, Slovenija Laboratorij za vede o okolju in življenju in Center za informacijske tehnologije in uporabno matematiko

00386 (0) 53315223
Rožna Dolina, Vipavska cesta 13, 5000 Nova Gorica, Slovenija
Donatella Gubiani